The New Normal

We are nearly halfway through chemo and Alyssa is back in the hospital yet again for a fever. It is like clockwork.  We are always instructed to take her in if she is above 100.5. The reason for this is because she is at a high risk for infections and needs antibiotics help. We are also not allowed to give her Tylenol. When she receives this particular chemo, her immune level always drops which makes it dangerous for her to fight off infections. It is unavoidable, the body responds with a fever.

So we take her to the ER to get her antibiotics, bloodwork for her immune counts and a culture. If my theory is correct, she has no infection, just the usual body response to low ANC immune level counts and minor viral infections.  The new normal after getting doxorubicin and cisplateen chemotherapy.

We got prayer warriors going as usual hoping her fever goes away and she can go home.

As for how I am holding up, I am trying to be present and provide more support for her. Hardest struggle for me these days is getting up in the morning to face the day. I ask for your prayers in this small but important endeavor. I have been praying myself as well.

Fortunately this time in the hospital, she was able to join in on her class remotely via zoom with her classmates so she is happy about that. I am glad to see her looking forward to something she has not had in a while.  I guess you don’t appreciate it until it’s gone.  Important to be grateful for small blessings.