Tuesday, July 7, 2020

Week 25

Well, here we are approaching the last leg of chemo therapy. Next week two outpatient visits, then 1 week break, then the last two back to back week chemos....yay!! Still not out of the woods by any means, as the side effects (especially with appetite issues) will linger after chemo is done.  I am glad to build a network where I can ask questions and know what to expect.

I am happy and ready to move forward. I am on leave without pay from work until next April but I must begin looking for my next work assignment, April 2021. Fortunately 6-year rule of working stateside max for the State Department has increased to 8 years so I can try for an assignment in Florida again since I have worked in the US 5 years since returning from Baghdad in 2015. This means I need to lobby soon and if it’s not FL this time around, I may have to separate again from my family. I don’t want to, it has caused emotional turmoil for me and a distancing with my daughter.  As I say before, they don’t pay the big bucks for nothing.

Alyssa is doing fine.  She still has issues from chemo side effects but we are doing our best to manage it. Her blood pressure is normal again.  If my calculations are correct, a fever is due week 27, and she is back in the hospital with those darn covid nose swab tests again for EACH hospital inpatient admission. I have heard babies cry but even a grownup has cried. Yeah, imagine having someone push a stick up your nose. Each time she cries, and each time it gets worse when the nurses try and she delays it up to 3-5 min before she is ready.

I am just glad this will be over. I am looking forward to when she is no longer immunocompromised. I see pictures of ppl’s Instagram and Facebook vacay pics to the outdoors, pool parties, just getting out and one wonders....are we in the middle of a pandemic or what?! I wish I can get out soon with my family too. Hanging in there.

I’ll be back at the end to post soon. I know I used to be super active in posting to Facebook, Instagram, Twitter and what not. But I am slowly but surely returning to my normal self.  I am beginning to realize how I fell into this deep dark pit and now I am ready to pull myself out ....real soon.

Til next time. Thank you for praying for us. 🙏🏻😊❤️