Friday, June 12, 2020

Week 22

It is now week 22 of Alyssa’s chemotherapy adventure since this all started December 20. This week she is home with two outpatient visits of chemo and next week she is off. The side effects these last two weeks have been the high blood pressure, which we can only assume resulted from meds and IV fluids. She is now taking medication for that. Every week, something new resulting from chemo.

Good news, her chest X-rays and femur MRI came clear. The cancer has not spread to her lungs, thank goodness. We asked for a bone scan which is full body she will get next week. Just to be sure. Thank you everyone for your continued prayers.

I joined Gilda’a club, oncology support group for those impacted by cancer. So far I met one lady who’s 20-year-old daughter just finished chemo for osteosarcoma and I am glad I got to share concerns with side effects her daughter experienced similar pains resulting from chemo.  I was concerned about Alyssa’s nutrition and weight loss and she reassured me her daughter went through the same, as long as we get some food in there somehow and to always give her what she asked to eat.  

There is a new 11-year-old girl diagnosed with osteosarcoma who also lives in Shenandoah, our neighborhood. We hope the family will want to connect with us, this would be good for Alyssa to mentor and share with a girl close to her age.  Having the support during cancer treatment is so important.

As for me, I am hanging in there as usual. Trying to take it day by day.  They say taking care of yourself is important for caregivers so I have to make sure I do what I can - prayer, exercise and eating better.  I used to do so much back in the day. I wonder where I had all the energy. Of course I was a bit younger and more motivated then.  Now I am just trying to recover from all that’s happened in the past year and being patient with myself to get through it.

As I close this entry, I pray for continued strength to get through the remaining eight weeks. And from there, side effects will start to go away and things will start to normalize up.  I am hoping with all that is happening in the world with covid, that things will get better and get back to normal soon.